I’m getting pretty good at this whole sitting around and waiting thing…but it still drives me crazy! Right now, I’m sitting on the floor in a hallway of the U of I hospital, because the tiny and very crowded waiting room was making me want to crawl out of my skin. So I found a corner with an outlet for my computer and I’m camping out. Lincoln is happily snoozing in his stroller and people are walking by, but I’m getting very good at pretending like I’m alone. Josiah is getting his medical port in as we speak and my heart is praying for him, missing him, hurting for him. We will more than likely be starting Chemo after this and will be in the hospital for several days getting his infusion. Being here in this hospital is not new and there is no mystery to any of this…lots of waiting…lots of sitting around…and more waiting. I have done this before. It is the same, and yet very different. This time I am the wife instead of the mother. There is similar heartache though and even though this world is familiar, that doesn’t make it any easier. But…I have felt the faithfulness of God here. I have seen the mighty hand of God here. And that same God is with me today. I am thankful, hopeful, peaceful.
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Beautiful Things 
Hi Jessica!
Is that the view from the hospital window? What a handsome family! Hope things are going well for you all today. We’re praying for the Lord to give you & Josiah extra strength. You all are an example for us to follow. Hang in there…
Love Tom & Mona
Testing 1 2 3 … not sure if this is working
Jess,
Upholding your family in prayer as God leads. Tears again, as I think of what you are going through. May He comfort & strengthen your hearts & may you faithfully wait! Love to all of you, Tabitha B
Waiting rooms are not my favorite place either. Whenever I have to wait I remember that God puts us in His waiting room at times too but the good part of that is that we are not there alone. He is with us. Praying, praying praying for Josiah.
Jess~we’ve been thinking about and praying for you 2 continuously today! We’re so excited that you are able to start this blog so we can all stay updated. May be peace of our Lord and Savior be with you tonight! We love you guys!!!!
Hello Johnson family,
I have followed your blogs with Ava and prayed for you every step of the way. Through those blogs and Clint and Margie Campbell, I feel I have come to know your family. Ava is especially dear to my “heart” as my grandson was also born with TAPRV and has been with his Heavenly father for nearly 4 years now – he would be 5 in July. I didn’t know if my heart could survive, but isn’t our God Wonderfully AWESOME! As you and Josiah and your family begin this new and strange path of life together, I will be praying for you continually and unceasingly.
Jess,
I shared with Josiah that my brother has been on the same road with the same Dr. He was also admitted yesterday. If you or Josiah feel like talking to another sarcoma patient, they would be happy to talk. He broke his leg yesterday and is having surgery today. His name is Randy Maifeld if you’d like to talk. You are all in our prayers.
Dear Jessica, I am fervently praying for you and your dear husband. As a cancer patient I can tell you the port is a great thing for treatment. It may bother Josiah at first but it is such a blessing not to have to be poked in your tender arm over and over. Tell Josiah to tell the doctors when he “just doesn’t feel right” sometimes that’s a blood thing. There are so many things they have now for the side-effects of the chemo. I am praying for your peace, a confidence in your doctors, that Josiah’s side effects will be minimal, and the miraculous hand of God.
I camped on these verses today: “The Lord is my rock, my fortress, and my Savior; my God is my rock, in whom I find protection. He is my shield, the strength of my salvation and my stronghold. I will call on the Lord, who is worthy of praise, for He saves me from my enemies.” Ps. 18:2-3 We’re praying for all of you!
Jessica,
Praying for you and Josiah today!
Hi Jess, Josiah & family,
Lifting you all up in prayer to our Heavenly Father, that He will stregthen & encourage you through this time and especially give Josiah healing. I was in homeschool groups with Josiah years ago, so tho you don’t know me closely, I’ll always remember the sweet Johnson family! Praying & thinking of you,
Beth
Johnson Family
We are praying for you. I appreciate your taking the time to update this blog. It makes it nice to know how to pray for you. Norm has committed to pray for your family every time that he wakes up in the night. Right now you are getting lots of prayers. No worry for Norm he is still off work from his surgery. Seriously you and your extended families are in our prayers. Please let us know if you need anything.
Jan
We love you guys so much! What faith you have , and what a testimony you are to live by. PLEASE let us know what we can do for you and your family. We want to help in anyway we can. Praying everyday. and Thinking about you all of the time. Because of Him , Sarah